Guess What

It happened again. I was talking to my mother and standing wheny legs decided to give out again. I think I’m getting better. Instead of crying like I usually end up doing, I just cursed my frustration. I’ll probably cry later when I’m not in the presence of my mother. 

My legs are freezing. It’s beginning to become more and more annoying.

Let’s see how long this one lasts…. Sigh…

Yesterday

So, let’s talk about yesterday. 

I went to this supposed neurologist. I get there, and he checks my reflexes and has me walk a short distance and then tells me “tests” are normal. Also, tells me that “there is nothing that can only last hours and stop.” 

Haha, no, bub. There is, I’ve read about numerous things. Amongst these “tests” he put a vibration tool on my legs and on my way out, my legs start getting sore. Like electricity was zapping through my veins. It continues to get worse until I was in tears and swallowing screams. My concerned boyfriend then pointed out that my legs were exceptionally pale, but my toes were bright red. Almost as if all my blood rushed to the tips of my toes and stayed there. 

Since then, the pain has died down a bit, but it continues to get more painful to walk. Every step I take feels like my bones are breaking crack by crack. 

I looked up this “nuerologist” on Health Grades. He had a rating of 2 stars, and according to many reviews, he refuses to touch men. Which is why I am very glad my boyfriend came back with me. 

He was rude, impatient, and didn’t like questions.

I have my nerve conduction and an MRI on my spine tomorrow morning, but something tells me that I’ll be ending up finding somewhere else again. 
If anyone has any idea what specifically could cause my issue, thoughts would be highly appreciated.
Temporary paralysis, numbness, inability to move or feel my legs mid-thigh down. No senses. No movement. Legs pale and ice cold.

When I am able to move again, a tingling feeling happens in my legs and after about 10 minutes I can move them slowly, but weakly again. Longest episode being 9 hours as of date.

Now with pain when I walk and increasing.

Don’t Know

So, according to my doctor, it sounds like my breast has gone and filled with fluid again. However, if it keeps doing it this quickly, I need to know why and what to do. 

I can’t keep driving to a place that is over 3 hours away every week, let alone 2 and 3 times a week. It just can’t be done. 

Thankfully, my boyfriend should be getting his car back from the body shop soon and he can just take me. My mother hates driving in big cities that don’t have back roads, and for some reason, all of the actually good hospitals and doctors seem to be in that area. 

It escapes me why I’m surrounded by idiots that seem to have gotten their medical license from the bottom of a cereal box, but in the worst place possible, there are good doctor’s that know what they’re doing and are willing to help you.

I can’t keep doing this. As is, there is a lot of stress going on in my home life, and this doesn’t help in the slightest. 

Not What We Thought

Yesterday was my appointment at the Breast Clinic, and I got the full results from my biopsy.

According to the results, it wasn’t duct ectasia, but rather focal florid usual type duct hyperplasia. Plus 3 peripheral type micropapillomata were found, largest being 2mm. 

As for the other, I shall write it word for word here:
“Final Report:

Sclerosing adenosis.

Proliferative fibrocystic change (including focal florid usual type hyperplasia and three peripheral type micropapillomata).

Preliminary Report:

Initial sections demonstrates sclerosing adenosis and nonproliferative fibrocystic change including extensive stromal fibrosis.”

Now, as far as the hyperplasia, I’ve done some looking into and it doubles my chance of developing breast cancer. I’m currently trying to look into the micropapillomata and the proliferative fibrocystic change. I think I know what the sclerosing adenosis is, but I will recheck before anything else. 

Until then!

Coming Back

I’m going back in a week.

I have fluid in my breast, 26CCs worth, according to the nurse that needed it out of me. It hurt like hell. I cried. 

I’m in a lot of pain right now. I’ve been ordered antibiotics as back-up. 

Momentarily I thought I was going to have another episode whilst at the Breast Clinic. Luckily it went by without much incident. Now, I await until morning to remove my pack and wait until anything else comes about.

Until then!

Sleep

I have to check my stitching this morning because unfortunately my boyfriend moves while he dreams and he elbowed me in my “bad breast” as we call it. It’s not his fault, but he won’t stop apologizing. 

This update has been short, but I need to check on it still. My follow-up appointment is tomorrow.

Until then!

Nurses Who Know

Do you know what I love? Nurses who know claustrophobic people don’t like things pressing against their faces! When I had my surgery, the nurses had the mask resting against my chin and tilted up and told me to breathe in deeply. It was a much better experience than when I had my appendix taken out at a hospital nearest to me. 

With my appendix out, they had shoved the mask on my face and told me to breathe in. Then upon waking, I went into a panic attack and then they shoved the mask more and more into my face and told me to calm down. Yeah, that’s easy with you choking me with a rubber mask!!!

This time, it was much better. I’m pretty sure they slipped me some happy gas in there, too, because I didn’t have a panic attack this time. 

I loved my nurses! (well, all but two of them, but we’ll get there.) They were friendly and polite and tried their best to distract me from unpleasant things like needles. 

As for the two I don’t like, my first nurse was a cranky old hag who told me to put my robe on backwards for her own amusement for another one I didn’t like (a condescending blonde that didn’t knock when she popped in while I was trying to dress.) 

So, I told my boyfriend that if they tell me to turn it around again, they were doing it. 

It’s kind of funny, though. I concentrated more on making my boyfriend smile and laugh before my surgery before anything else. 

He has been very sweet and concerned about me, even doing some things without my asking. Apparently I slept for a good 6 hours after I got home, and when I got up to use the restroom, he spread out the sheets to smooth them and even tried to tuck me in as gently as he could. 

That deserved a big kiss. When a guy says that if you want anything, he’ll drop his video games and do it, you know it’s serious. 🤣

I’m still in pain, but only as much as I was before, until the nerves around my nipple wake up, then it feels like sharp shockwaves trying to explode my nipple. 

On the bright side, I still have to wear my bra, (I can’t stand not wearing my bra, only some will understand) and now I can eat almost everything I want. My nurse told me no coffee for 48 hours, though, but I can have soda, which confuses me. 

However, I cannot sleep on my right side (the side I had surgery on) or, obviously, my stomach. So I have to prop up on a few pillows, which I hate doing because it always makes my neck stiff. 

Otherwise, all seems to be okay. I’ll keep you updated on my experience!

Until then!