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How This Started

It began in November, 2016. Ironically on the weekend after my birthday.

I had noticed a wet feeling in the right side of my bra just before bed after my cat had previously jumped on it, originally, I thought it might have been my talent of gaining scratches by impossible means.

Instead, when I looked, I was met with a very dark discharge that oozes from my breast like a sticky syrup. Emotions were already high during that time, so I ignored it and went to bed.

Skip to two weeks later, the discharge hadn’t stopped and my breast was starting to hurt. I decided to do my monthly self-exam and found a small lump that was new and unusual, but was movable at the time.

It was the holidays, so it took almost a full month to get in to see my doctor. He referred me to surgical doctor. Which took about another month, because of the 2+ weeks waiting for a call and then New Years. It was very exasperating when paired with the fact the pain was getting more intense as the days went by, and more discharge seemed to be expelling out.

I went back and forth to this horrible doctor over the next 3 months. Tests, MRIs, even a CT scan. For her to try to tell me nothing was wrong with me and that she could always “go in and cut blindly.” Fat chance, lady!

Cut to yet another month going by and suddenly it began bleeding. It started out as only a little, then suddenly was gushing blood. If I didn’t already have a heavy period and was prone to injury, I probably would have fainted in the shower more than once at the amount of it.

I thank myself every day for forgetting to put her number in my phone and having to Google it. A review had been posted at about the same time of my last appointment that basically screamed what I had been saying all along. I won’t put the woman’s name on here for her privacy, but I will post what she said in her review here:

 

Dr. Owens did not know what she was talking about for my surgery. My surgery was also canceled and I was never given a reason as to why. Now that I have done more research I have found she was trying to do a surgery that she has never done before and was not giving me proper pre-op care for it. She lied to my face. The only reason she finally gave me a referral was because we berated her about it. By postponing my surgery I may wind up with permanent damage and though my symptoms are getting worse she obviously didn’t care. I have a RARE tumor and since it’s a once in a lifetime surgery, instead of doing what’s best for me as a patient, she was doing what was best for her as a surgeon because she wanted the chance to say she had done one of these. I will never go back to this practice.

 

This is when I decided I would drop her like a spoiled girl dropped a zircon diamond.

My mother told me about a woman she had gone to for her womanly issues that I won’t post here without her permission. This lady was the beginning of everything.

I had to go through a blood test to start, and she checked me out, even tested the discharge. Something the other hag never even thought to do. She then told me that she was going to set me up with a Breast Specialist in a place about three hours from my town. I didn’t relish the idea of going to this particular busy city, but I had been there before for previous issues, and I was desperate at the point.

 

The specialist, I have to give my gratitude. After one visit, she diagnosed the most likely thing going on with me as what is called Duct Ectasia.  I will explain what that is here:

Duct Ectasia is a chronic inflammatory condition effecting the subareolar periductal (beneath the nipple and beside the ducts) region on the breast. Left untreated it can eventually lead to the obliteration of a breast duct, but in early stages it causes the terminal ducts to ‘dilate’ (widen). When the ducts dilate, they may contain cholesterol crystals, calcification, protein secretions, and polyps containing histiocytes.
The produces an inflammatory reaction, which may result in nipple discharges. Duct ectasia is completely benign and unrelated to breast cancer. Duct ectasia can produce a sticky, multicolored discharge, almost like toothpaste. Sometimes duct ectasia causes pain, itching, and possibly swelling of the nipple, and if it progresses a mass can develop. In early stages the condition is not serious. If a mass has developed or if the discharges become bloody, it will probably be surgically removed. Duct ectasia or plasma cell mastitis accounts for about 1% of all surgically treated lesions. Due to its location, the nipple will likely have to be removed. From a cosmetic standpoint this is unfortunate, but the condition will not likely resolve on its own and left untreated can result in fibrosis and shortening of the major ducts. Duct ectasia does not raise your risk of breast cancer.

 

Now, 7 months since this began, I have some answers and am scheduled for my surgery on July 6th, 2017. I will be writing about the after-care and the days up to the surgery.

 

I also have another issue going on that began right before going to the Breast Specialist that I will talk about and hopefully track in a different post! Until then!

 

Guess What

It happened again. I was talking to my mother and standing wheny legs decided to give out again. I think I’m getting better. Instead of crying like I usually end up doing, I just cursed my frustration. I’ll probably cry later when I’m not in the presence of my mother. 

My legs are freezing. It’s beginning to become more and more annoying.

Let’s see how long this one lasts…. Sigh…

Yesterday

So, let’s talk about yesterday. 

I went to this supposed neurologist. I get there, and he checks my reflexes and has me walk a short distance and then tells me “tests” are normal. Also, tells me that “there is nothing that can only last hours and stop.” 

Haha, no, bub. There is, I’ve read about numerous things. Amongst these “tests” he put a vibration tool on my legs and on my way out, my legs start getting sore. Like electricity was zapping through my veins. It continues to get worse until I was in tears and swallowing screams. My concerned boyfriend then pointed out that my legs were exceptionally pale, but my toes were bright red. Almost as if all my blood rushed to the tips of my toes and stayed there. 

Since then, the pain has died down a bit, but it continues to get more painful to walk. Every step I take feels like my bones are breaking crack by crack. 

I looked up this “nuerologist” on Health Grades. He had a rating of 2 stars, and according to many reviews, he refuses to touch men. Which is why I am very glad my boyfriend came back with me. 

He was rude, impatient, and didn’t like questions.

I have my nerve conduction and an MRI on my spine tomorrow morning, but something tells me that I’ll be ending up finding somewhere else again. 
If anyone has any idea what specifically could cause my issue, thoughts would be highly appreciated.
Temporary paralysis, numbness, inability to move or feel my legs mid-thigh down. No senses. No movement. Legs pale and ice cold.

When I am able to move again, a tingling feeling happens in my legs and after about 10 minutes I can move them slowly, but weakly again. Longest episode being 9 hours as of date.

Now with pain when I walk and increasing.

The Scare

So, yesterday was the first ever seizure my dog, Sidka, has ever had. The seizure itself lasted for a good few minutes, and when he came to, he was aggressive and disoriented. 

Now, my eldest sister got bit during the ordeal and is terrified of him. The only reason she was called was her experience as a vet. 

She expressed her want to have him put down. But, you wouldn’t do that to a human, and I don’t want to do that to my dog. 

I now have to keep him away from my niece and nephew when they are around, and now my eldest sister who is off of work the next few days. I’m not sure what to do. 

If there was someone we knew in the area that would take care of him and know what to do, it would be one thing. But right now, there isn’t and I’m not going to put my baby boy down just because he’s sick. 

The vet says that most dogs often only have one seizure in a lifetime. Sidka is on seizure medicine because it lasted so long and was so strong for his first seizure. 

If anyone has ever dealt with this and can give me some advice, that would be great. I live in a crowded, small 3 bedroom “house” and have no money to move thanks to a very high rent keeping me in place. 

I live in the deep boonies. Where the people believe the only good animal is a dead one and the “Humane Society” here is the pound- where you’re lucky if they hold a dog for a week before they kill them. 

Please, help.

The Calm Before the Storm

I’ve finally started to calm down from the horrible events of today, and of course… My legs start to act up as I’m pumping gas into the family van. I managed to hold myself up long enough to force myself into the van, (thank god I was using a card!) and now I sit here waiting on my sisters as my legs turn cold. 

I didn’t go in with them because I knew I’d fall. I’m sick of it all. I’m not sure what to do, my neurology appointment isn’t for another 2 weeks.

Broken

 I’m not sure what happened. He was sleeping on the couch and then went into convulsions. My family managed to get him to come to and he was fine for a full minute. 

That’s when all hell broke lose. He lunged at my mother and my sister had to grab him by the collar. He was biting and snapping and he got my sister on the arms. She got him locked up in a room by himself and we called the vet. 

My father and second-eldest sister are taking care of it now. My niece and nephew are with their biological father because we wanted them safe. All of my other animals are locked in a separate room where they are safe.

I am currently sitting in an Emergency Room and my sister just got called back. I feel broken. I raised him from a puppy the day I rescued him out of freezing rain. He was my butterball. 

I’m not sure what happened because nothing changed in the times before it happened. He’s an inside dog and came in no contact with anything that could have caused this. His food hasn’t changed, either.

I don’t know if I can handle this on top of everything else. My neurology appointment is in 2 weeks. I just healed up from surgery. 

I am worried about everything now. 

My sister got him outside. He’s calmer now. But I can’t take the chance. I don’t know what to do. I can’t bring him inside. I can’t handle this.

About Time!

After many, many phone calls today, I actually managed to get an earlier appointment for my neurology appointment!!! 

I’m pretty sure my primary’s receptionist was upset I did it my damn self. Her explanation for why I hadn’t been called in the last month was she “hadn’t checked it in a while.” 

When I told her about my set appointment, there was pure silence on the other end for a good half a minute before she asked when my appointment was. 

If you’re not going to do your job, I’ll do it myself!!! Obviously you don’t care enough about the patient to try!!!